Can I join in for advice too, please?
I, on the whole, don't have much problem with spasms though my ankles seem to move into odd positions when I lie down. However, I am trouble sometimes with a large jerk which flexes my hips forward and sometimes repeats a few times. Trying to sleep when this happens is hard. Last night I had several 'jerks' and after each one I changed position but obviously not very well as it happened all over again.
In the past I have tried Baclofenac and Tizadinine to help with more troublesome legs spasms in the day and the Tizadinine worked well at the spasms but I felt a bit 'not with it' which I didn't like. Sadly, nothing helped the night time jerks.
Any suggestions on what to do or try? I don't have the problem every night but it is very annoying when it won't go away. Thanks guys!
sorry mate, I just can't help laughing at that. I will tell you why in a moment, but anyway to the topic of the thread for now.
Broke my neck in 1984. The physio on the unit would always put me with the new physios as a bit of a joke, because my spasm was so bad. I suppose everybody is different, but what I have done to manage them is try to sit or lie in positions which is one do not stimulate the spasm, and tworeduce the effect of having a spasm. But they are still quite bad, and once they get going can be quite lively.
Because of these spasms I have never taken up driving, so there are plenty of negatives, but in the main I am happy to live with them because I feel A/they are really quite good for your health. In the morning they saved me going for a jog, providing a two or three minutes aerobic exercise. B/they keep the blood supply to your skin, tone in your skin, and the muscle bulk. All of these are excellent for avoiding pressure sores. C/ I am able to use the spasms for all kinds of things. For example I can stand up on them. I can open my hand (using several techniques such as pushing the pram in particular position whilst inducing spasm in my triceps and wrist.
I would seriously advise to keep drugs to a minimum. I know it may be stressful, will take some time to play with them and see how you could possibly make use of them.
If you can find the interest and you still definitely want to reduce them to the minimum, then in my opinion exercise is indeed the best.
PS. Got to say this is only my opinion based on my experience. Your friends may not be the same experience I am having. If he/she wanted I would be more than happy to chat about this on the phone.
PS. wheels5894 why I was laughing. About four or five weeks ago I started getting a sharp jerk up pull in my right leg. So I ignored it for a while, hoping it would go away. I have had such in the past, and they have gone away. Eventually went to the spinal unit. The consultant did xray. Only found out I might need a replacement with arthritis. Couldn't believe it. As a result at present, at times in bed I am having gay violent spasm in my rights like every 20 seconds. SEVEN IN A NIGHT? YOU LUCKY BASTARD!!! Al la Monty Python Life of Brian.